Raising a child with chronic illness – a blessing in disguise.

Parenting a child with chronic illness requires more strength, resolve, perseverance and courage than we likely ever dreamed possible, yet it also blesses us with the gifts of compassion, perspective, presence, and profound love as we are daily drawn closer to Christ.

FACTS

We are currently compiling parenting facts and will provide you with helpful content soon. Please scroll down for books, blog posts, and other helpful resources.

FEATURED BOOKS

Comfort: Inspirations for Parents of Chronically Ill Children,

Kathy Hardy

This sensitive, honest, and heartfelt devotional doesn’t pull any punches. It encounters all aspects of raising a chronically ill child and helps others understand the day-to-day struggles and joys. It is eight weeks of reality: the good, the bad, and the ugly. At the end of each week of devotions, you’ll find a short chapter of Kathy’s family’s continuing story of raising their eight children, three of whom have Cystic Fibrosis (CF). This book will touch you. It will make you laugh, cry, and feel less alone. You will feel understood and know that your journey is shared by others who experience similar emotions. You can give this book to family members and friends whom you feel lack understanding of your family’s dynamics. You will feel comforted to know that God and others walk this difficult path along with you.

The Life We Never Expected: Hopeful Reflections on the Challenges of Parenting Children with Special Needs

Andrew Wilson, et al.

Sometimes life throws you a curveball. Andrew and Rachel Wilson know what it means to live a life they never expected. As the parents of two children with special needs, their story mingles deep pain with deep joy in unexpected places. With raw honesty, they share about the challenges they face on a daily basis—all the while teaching what it means to weep, worship, wait, and hope in the Lord. Offering encouragement rooted in God’s Word, this book will help you cling to Jesus and fight for joy when faced with a life you never expected.

Different Dream Parenting: A Practical Guide to Raising a Child with Special Needs

Jolene Philo 

Parenting can be difficult and tiring, especially when you have a special needs child with medical, behavioral, or educational issues. In Different Dream Parenting, author Jolene Philo offers guidance and encouragement through biblical insights and her own personal experiences. Find spiritual wisdom, practical resources, and tools that can help you become an extraordinary advocate for your child. Discover how you can move beyond the challenges and experience the joy of being your child’s biggest and best supporter.

A Different Dream for My Child: Meditations for Parents of Critically or Chronically Ill Children

Jolene Philo 

For years, Jolene Philo’s son was hospitalized many times as he battled a life-threatening birth defect. Far from home, without friends and family to support them, Jolene and her husband felt utterly and completely alone. Today, support networks for parents of critically or chronically ill children have improved, but most only provide for urgent physical needs. The devotional meditations in this book address the spiritual needs of these parents as the author shares her own life lessons, as well as those of other parents who have walked this road. No matter how difficult the road, Philo says, you do not have to lose hope.

BLOG POSTS

Dear Chronically Ill Parent

A Letter to the Parents Who are Chronically Ill - You are Not a Failure My mum has a chronic illness. She’s been sick for as long as I can remember. Mum, this letter is for you. Dear Parent with a Chronic Illness, You don’t have to say it aloud. I’ve read it in your sighs, your...

READ MORE
Your sickness has not lessened who you are.

How Can You Tell When Someone Is Suicidal?

Depression that leads to suicide isn’t just the plight of the financially-strapped, unemployed provider of a household, or the teen who’s tormented by bullies, or the retiree who’s weary of declining energy and escalating physical pain. Just ask the friends of Kate Spade and Anthony...

READ MORE
Hope in God, for I shall again praise him.

The Power of Prayer

When asked, “What is something that surprised you about chronic illness?” my mind was overloaded with thoughts.There are so many things that have surprised me in my journey as a “heart mom.” I thought of all the unforeseen things I’ve experienced, all the relationships and...

READ MORE
Prayer has a purpose and it's powerful.

Burden-Bearing

  Burden-Bearing The healing power of inviting yourself into someone’s pain. A number of years ago when my oldest was getting ready to leave for college, my youngest, who had shared her room since she was born, was counting down the days of her departure. She was going to be...

READ MORE
Carry each other’s burdens - Galatians 6:2

Field Notes of Pain – Jesus, A Pain Pioneer

This is part two in a two-part series entitled: Field Notes of Pain ….. There was this youth group kid that whittled. You know, the art of taking a piece of wood and turning it into a troll or something. He did that. And he was good. I was fascinated -  first, that a high school boy liked to...

READ MORE
Field Notes of Pain – Jesus, A Pain Pioneer

The Hidden Labor of Disability

Do your best to offer to help do some of that work if you can. The hidden labor is real and exhausting, despite being hidden. ... Understand if they cancel plans at the last minute. Empty their dishwasher or fold their laundry while they’re on the phone. READ MORE
Image of cacti with Colossians 3:12

EVEN MORE

ARTICLES

To Those Caring for Sick Children, Lexi Behrndt

You are heroes. You are angels. You get to see miracles happen daily at your job. You get to see little lives come back after catastrophe and devastation, and you watch as they heal and grow and smile again.

And then sometimes you don’t.”

To the Momma of a Critically and Chronically Ill Child, Lexi Behrndt

“You are brave. You are strong. You are loving. You fight for your children when they can’t fight for themselves. You hope for them and you stay positive for them, and then run to the bathroom just to cry in the stall where they can’t see. You research and talk to doctors and talk to other parents to find the best possible treatment plans and solutions to give the best life to your child…You go to the places no one wants to go. You know a side of the world that most would like to pretend doesn’t exist.”

Parenting Through Chronic Illness, Rachelle Wiggins

“For the past decade, God has allowed me the gracious trial of raising my children from the bed of chronic illness.  The learning curve was steep: I battled against the desire to be more and do more while living within the limitations of a broken body. Over time, I recognized a few principles that helped me survive — and still be a good parent — during the storm of ongoing illness.”

INTERVIEWS

 

SHARING LIFE, DISCOVERING HOPE AND A FEW FUNNY MOMENTS

by Diane Bailey | The Consilium Lakeside